Colby Rohn-Penn
Organ Donor
/May 2, 2025
Colby Rohn-Penn, Iktomi Mato (pronounced “Ick-Toe-May Mah-Toe”) Mischievous Bear, Proud member of the Sicangu (Sing-gah-jew) Rosebud Lakota Nation was a vibrant goofy young man full of presence and life. He came earthside February 28, 2006, large. His presence made him seem larger. He did nothing halfway. He either did something or he refused.
Diagnosed with autism at age 2 1/2, he began his legacy of teaching the world. His journey was not an easy one for him. As everyone around him struggled to understand him, he would get frustrated. His frustration would hurt everyone around him, physically sometimes. This includes himself.
He loved as large or larger than his body. His bear hugs were amazing. He was appropriately named. His laugh would have made the world of Monster’s Inc (a favorite movie) explode into infinite shards of joy. He loved swinging—to the point all were amazed that he didn’t do loops. He loved water. Then he didn’t. Then he did again. He loved “raining” things—throwing them in the air—picking them up and doing it again! He loved riding in cars. He loved movement.
He loved food. His giant body needed a lot of food. Whenever you eat pizza rolls, potato cakes, fry bread, hamburgers, eggs, quesadillas, goldfish and cheeseballs—think of him. He would want you to stuff it all in your mouth at once—please don’t. He also would want you to eat all the candy. Be careful. That didn’t make for the nicest of Colbys. Words of advice: An entire 2 pound bag of shredded Colby Jack cheese should NOT be placed in the microwave with a pack of tortillas sealed with a metal tie. It will spark a fire and the cheese is a lump. This sparked the #DammitColby movement.
His spirit and awareness has always crossed barriers. He could sense things nobody else could see. We hope his spirit crosses those same barriers and visits all who were touched by him; all who loved and were loved by him; and all who benefit from the gifts from his earthly body and bring them joy in the simple things in life.
Saying thank you
Many donor families find that corresponding with the transplant recipient or recipients can be a powerful experience. Donor families can take comfort in sharing stories and sending well wishes to those who live on because of their loved one.
Should you choose to connect, we're here to help. Letters and cards can be a tremendous gift to both the donor families and recipients. To protect everyone, we provide guidelines for communication. Names remain confidential unless both parties agree to share those with one another, and we provide a correspondence address. We are happy to share sample letters to help you get started.
For more information about corresponding with recipients, please call us at 505-843-7672.